ZB & ZC - clearly the brotherly love flows already :) :) So after THE CALL.... started weeks of craziness.... The 1st appointment stands out to me still over a year later. It was a rainy day & we drove - me & the 3 boys to a specialist out of town... She took one look at ZC & the information I gave her & sd she was pretty certain he had biliary atresia - a blockage. The way it rolled out of her mouth seemed harmless - we FINALLY had a name for what was the cause of the problems !! I felt about 50% relieved. Then she sd so I'm sending you to the Children's Hospital right now. Okay.... there went some of my feeling better feelings !! I mean I've always heard how hard it is to get into specialists...
So thankfully Grandma was with us and she helped corral the big Z's around. We ran to SO many appointments that I know I cannot remember each one... My heart & head were spinning out of control I felt... I was almost praying 100% of my awake moments - which was a lot..... Just preparing for the tests BROKE my heart... Here I had this *precious* bundle who loved to eat :) that I had to 'starve' for 4 hours & LONGER for testing - not just once but over & over again ! Yes all newborns love to eat but ZC really loved to eat :D Well we didn't know why yet..
So I would manipulate his schedule the best you can for a newborn. I'd keep him up late, let him sleep a few hours then wake him & play & bathe then eat & put him to sleep in his carseat so it would be one less move on way to hospital... I did everything in my power to have ZC be happy while not being able to eat... If I was told : "don't feed him after 3:00am then I'd start feeding him at 2:30am so he'd be right at the last minute of opportunity !!! And I PRAYED non stop !!!! I prayed for ZC to sleep peacefully The Lord blessed us each time :) and ZC did *awesome* barely fussing !!!! We did get him to take a paci during this time :) we would sometimes be allowed to dip it into sugar water to help keep him happy during the tests.
The test I was worried about the most was where we had to withhold him eating for 4hours prior to the test and the entire 1.5hours after testing !!!! ZC had to lie perfectly still during the test which was lil over an hour & he had dye put in his lil system to see where it would go... The techniian was not helpful to this very stressful time.. He would tell me things like : he might have : cystic fibrosis & .... wrong... grrr I later was told he had no grounds telling us that & thankfully he was WrOnG !
I stood over the long table and stuck my head right next to your ZC - heads touching :) I sang in your ears the entire time and prayed over you - You did GREAT !!!! We were ALL amazed :D I thank You Lord for every time you answered this momma's heart cry !!
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